When the new Beetles came out, Gretchen had kicked around the idea of ditching all of the cab business and getting a car. Since cars came with lots of options but none that made the car driveable by her, she and the Recluse realized the car would have to be modified. Gretchen heard that lots of disabled people got financial help for such things through Voc-Rehab.
Look. You work. You’re not really eligible to be disabled. Air-quotes.
One sleepy post-lunch hour in her clinic office, she gave in to an impulse and looked up the number. When no one picked up at the main number, she worked her way through the extensions until a deep, annoyed voice said hello. That one call into the San Francisco office of Voc-Rehab pretty much cured any hope she had of even minimal financial assistance. The call also showed how employment was a universal solvent on the human stain of disability, at least where government agencies were concerned.
The counselor had more to say, nasally, on the overall lack of money available and went on to say that he himself was legally blind and had been waiting five years for a computer he could use. To do his job. Voc-rehabbing people who were legally blind, for example. So complaining to him was not really something he would be real open to hearing. If she didn’t mind.
Want in on the conversation about ableism? Check out what disabled advocates, civil and human rights activists, and philanthropic leaders had to say at the Twitter chat on 10/12/18 about philanthropy and inclusion. Then make your voice heard at #FundDisAdvocacy.
Foundation funding for disability advocacy dropped 23% between 2011-2015. Disabled people were the only group to see a decrease. Most funders are “aware” of disability but do they see ableism and structural discrimination? How do we make funders see disability civil and human rights as areas of actionable, urgent advocacy? A first step is recognizing disability as a constant but hidden set of variables in nearly all formulas for civil and human rights.
I’m writing to you in my capacity as a community organizer – which is another name for a social justice fundraiser.
I believe you and I share common ground on the importance of advocacy:
We know that the great civil and human rights gains of the last century, envisioned and organized by the grassroots, were built to last through the courts and legislation, and they will continue to be the battlefields for preserving them.
I’m writing because disability civil and human rights advocacy is missing from your funding portfolios.
The first step in changing that is frank communication.
When you do not explicitly say “disability” in funding advocacy, you send a message to us: Deny, disown, and downplay your disability identity. That denies all marginalized communities access to our hard-won legal tools and, worse yet, our expertise in using them.
You may understand this letter, at first, as pertaining to a discrete group: disabled people. But it is a fundamental mistake to think that civil and human rights for any community can be fully achieved if we neglect, forget, or disregard such a basic human condition as disability and allow it to be the “natural” cause of poverty and abuse. If we are not safe or free to be vulnerable, then we cannot call ourselves safe or free. Our society is not safe or free.
Issue No. 2: The Takeaway or Please, Take This Essay Away
In which The Crip shares 2¢ takeaways from John Hockenberry’s 7,000-word essay about the loss of a high-status career identity that was purchased and published by a pretty damn high-status periodical.
THE TAKEAWAY! Hockenberry says none of this is justification for offensive behavior toward women but it sure seems like he does:
“Being a misguided romantic, or being born at the wrong time, or taking the wrong cues from the sexual revolution of the Sixties, or having a disability that leaves one impotent at the age of nineteen—none of this is a justification for offensive behavior toward women. But is a life sentence of unemployment without possibility of furlough, the suffering of my children, and financial ruin an appropriate consequence? Does my being expunged from the profession in which I have worked for decades constitute a step on the road to true gender equality?”
THE TAKEAWAY! Hockenberry thinks “unemployment” is the same thing as “not getting the same high-status work I once had and still want.”
Did You Know?
You may be working three jobs but those aren’t real jobs if they’re not prestigious. Take note of this, low-wage workers. #CripTips
2018 UPDATE: STILL ALIVE
STILL OPPOSED TO EUPHEMIZING DISABLED PEOPLE BY NORMALIZING OUR SUICIDES THROUGH LANGUAGE
I’m still disabled, still degenerating, and still filled with joie de crip, but even if I weren’t, I still wouldn’t be buying the double-speak that calls my suicide “a rational choice,” “death with dignity,” and “ending my life on my own terms,” while a (seemingly) nondisabled person’s suicide is “a public health problem.”
The terms we use in talking about an issue set the terms of the debate. Suicide is a public health problem. Distorting that through
sophistry marketing language feeds suicide contagion.
September 10 is World Suicide Prevention Day. But for a disabled person like me, it’s just not my day. Literally.
What would be a “threat of self-harm” for you, is a “personal choice” for me.
What calls for an intervention for you, calls for a pre-suicide party for me.
Your movie is It’s a Wonderful Life. My movie is It’s a Wonderful Death.
When it comes to people like me, suicide is rapidly becoming normalized. Or more exactly, suicide is being erased through re-branding. “It’s not ‘suicide’! It’s ‘ending your life on your own terms’!”
“I’ve given a lot of thought to how Transcendental Misanthropy relates to conventional medicine. Of course it has a lot to do with intention. If your doctor prescribes an anti-depressant that gives you side effects that are about as debilitating as your depression, does that make your doctor a practitioner of Transcendental Misanthropy? Has your doctor embraced the essential paradox that pain relieves – increases, paradoxically – pain? The simple use of ‘side effects’ and ‘mild discomfort’ to describe loss of sexual function, insomnia and in the case of weight-loss treatments, bowel control, inspires my respect, I have to tell you. Language is really something.
“I began to wonder why Max and Emma were considered lesser beings than my colleagues in the department, particularly the older ones and the guy with the hearing aid. I began to resent the condescending questions about my ‘pets.’ One day at a faculty senate meeting, I had my awakening. Max and Emma’s consciousnesses were equal to that of my human colleagues. In some cases superior. They had, after all, achieved for themselves lives we might envy in their ease and comfort. What they lacked was respect from others. What they lacked were their rights.”
“As our Eastern brothers have taught us, though failed to incorporate into a saleable product — although certain towns as Sedona, much of western Colorado, and just about all the Open Access workshop catalog, contradict this failure — attention is critical to our well-being. Or in this case our suffering. Escalation, escalation, escalation — escalating torment until it becomes unbearable is the way.
“You can’t do this without paying a whole lot of attention to what irritates you, what hurts your feelings. How you do it is up to you. I’ve known spiritual seekers in Marin who broke down in tears because their robes weren’t made of the right cotton. Seen fruitarians come to blows with botanists who tell them they’re actually eating vegetables.
In Which the FuckAbility™ Research Council DisRespectfully Suggests Tom Colicchio Was High When He Allowed a Cooking Challenge to be Held at 7,500 Feet Above Sea Level Given That One Cheftestant Was Pregnant and Two Others Were Using C-PAPs
Please pack your ableism and go
(The Height of Ignorance, CO) In a shocking twist, a pregnant woman and two men who don’t breathe great found this week’s battle to be a literally uphill one when they were dumped on a friggin’ mountaintop site where Lando Calrissian is planning to break ground for his Cloud City Diner. The guest judge, Ivan Denisovich Shukhov, announced the week’s challenge: Make a truly memorable dish for your own memorial service.
And — as every *real* chef should be able to do — pitch a tent in deep snow, walk around in the snow, endure freezing temperatures for over 24 hours, and manipulate sharp implements with exposed hands.
it’s even money at this point whether top chef knows that the “chilling effect” of asinine workplace practices and attitudes on women and disabled workers won’t be corrected with a thermostat.
With all due dis-respect to restaurant kitchen tradition and gulags everywhere, fuck that noise. Just because Leann still won episode 5 doesn’t make it acceptable that she had to forfeit the rest of the competition in episode 6. Seriously, she’s a fucking powerhouse and you fucked with the career trajectory of a hard-working woman chef of color. Yeah, she knew what the challenge was and, yeah, it was her pregnancy. So? That’s quite a fucking choice for her, isn’t it?