Issue No. 3: The Ally Issue
or You Can Lead a Nondisabled Ally to The Google But You Can’t Make Them Use a 100% Familiar Search Engine to Find Available Access Tools Themselves
In which Mx. Crip-Manners points out how good manners make good allies
“We’re super-excited you’ll connect us with disabled women for our project! We don’t know how to clean out a conference room though so can you take that on?”
Yes, it really is that basic: You don’t invite other potential partners to muck out your space for the meeting or event because you know that’s your responsibility. But you expect your disabled invitees to either resolve your access barriers or teach you granular how-tos. I know this from decades in grassroots women’s organizations and philanthropy.
My considered position is the result of 20-plus years of waxy bummer build-up that comes from first being invited to be a partner or guest — and then being tasked with “the early shift of ableism” to clean up inaccessible messes.
Expecting this is just plain bad manners from you, otherwise decently-funded organizations, including foundations. Isolated requests for help, particularly under clearly difficult circumstances, are not the issue.
Did You Know?
Disabled people are not magical access specialists. We learned stuff. By learning. We are always learning new stuff. By learning. As Crip-Yoda says, “Learn you must.” #CripTips
The Best of Times, the Worst of Times: This Moment in Disability, Dignity, and Human Rights
An earlier version of these remarks was shared at Congregation Beth Jacob in Redwood City, California on March 3, 2018. I deeply appreciated their welcome when I was invited to address their community by Anne Cohen, an activist, disabled parent, and board member at the organization where I am Director of Development, Disability Rights Education & Defense Fund (DREDF) or, as Anne has dubbed it, “the ACLU of disability rights.” CBJ’s cross-disability access allowed me to take the first step in organizing community support: communicate.
I grew up with a disability, one that is genetic. I have been a plaintiff in an ADA access case here in California. It involved a bathroom. That required a lot of talking publicly about my using the bathroom. For disabled people like me – physically disabled — being disabled means never knowing where your next accessible public bathroom is. Today. Nearly thirty years after the ADA was passed. And keep in mind those 30 years coincide with my fundraising career in social justice non-profits and their philanthropic allies. Those are whole decades of trying my best to use empathy and imagination to shift that stubborn disability narrative that says I receive but can’t give. That disability is a health thing. That I need a cure when a toilet would be preferable. That I am charity, personified, not justice, denied.
And she had made sure the door was locked. She stood there, watching the gray-blue paint and listening to what was happening from within. At first, nothing. Then a murmuring confusion, then a rapid rise in decibel levels, quickly becoming Frank’s singular baritone summoning Gretchen. It didn’t occur to anyone that it was anything but an accident.
She waited and then knocked to get their attention.
“Hi!” she called. She had to knock harder because, as usual, they were still talking. “Hi, everybody! Are you ready to start the meeting?”
In a hurry to contact California co-sponsors to say #HandsOffTheADA? DREDF has contact info and scripts.
“Where, after all, do universal human disability rights begin? In too-small bathrooms, of necessity close to home – so close and so small that they still cannot be seen on any radar of Rep. Speier and way too many California representatives.”
It is profoundly demoralizing that Rep. Speier and other California members of Congress are cosponsoring
Imagine that you have a harasser. Imagine that never know whether he will block you from getting into the public bathroom you need — sometimes pretty badly! — or not.
Imagine hearing that your harasser deserves 6 months to make “reasonable progress” toward not-harassing you — as much. After you wait 6 months, maybe you’ll be allowed to say NO to your harasser. Maybe.
Imagine your Representative is championing your harasser’s excuse that it’s really hard to not harass you: “You have to understand that, yes, he knows what he’s doing has been against the law for almost 30 years but he needs more education.”
Access to a toilet is about dignity and safety whether the barrier is a harasser or a narrow door.
The ADA has been the law of the land for nearly 30 years and the only “reform” it needs is significantly greater enforcement. Disabled people in 2018 still can’t count on something as basic as a toilet in public spaces. If you don’t think there’s a cumulative effect of never knowing where your next pee can actually take place, you try holding it through 30 years of work-related business trips, restaurant meals, and meetings. Continue reading
are were a number of Democrats in Congress who are still not grokking that their vote voting for H.R. 620, the ADA Notification Act, is a vote against civil rights and disabled Americans, I’m going to show this absurd bill in action against real Americans.
By showing it in action against those really-real Americans, The Simpsons.
I’m Ingrid Tischer. You may remember me as “headless female torso using a walker” from Anderson Cooper’s “ADA Hit-Piece of Horror” on 60 Minutes. But I’m here today to tell you about a different type of horror: Being a plaintiff in an Americans with Disabilities Act (ADA) lawsuit, in which you’re presumed greedy and where whatever happened to you was no more than an inconvenience.
Four years ago, I began a multi-year metamorphosis into “non-vexatious litigant wanting to use a toilet.” That makes me the face of ADA lawsuits. But, in the 60 Minutes segment and the continuing slew of hand-wringing pieces about ADA scam-artists, you don’t see any faces like mine. A face like mine disrupts the narrative of the selfish — or gullible — cripple who financially kneecaps overwhelmed small business owners over access technicalities. You don’t hear much about how the proposed H.R. 620 would also apply to our considerably larger corporate citizens. So I’m putting my face right out there. This crip stays in the picture.
Despite the media’s fixation on “drive-by litigation,” — a completely non-accidental choice of phrase that associates fighting for my civil rights with gang violence – I was using the ADA as it was intended to be used, and should be used. As a civil rights law that, in 1990, made me a full US citizen at the age of 25. But in addition to the external changes in public spaces that have literally opened doors for me, the ADA is responsible for a profound internal shift in my thinking: I have expectations now that I didn’t grow up with: that I can enter a store, eat at a restaurant, cross a city street, open my office door.