My FEDup™Rant: I Want to Be Envied

FED UP TM Ideas worth ranting aboutI’m FEDup with aiming way too low.
I realized this after Congress voted this week to deny me the pleasure of peeing like non-disabled people do, which is to say, without having to do any kind of math, scheduling, or general advance planning when going out to public places.
But by being denied the minimum, I’ve learned to want everything.
You know what would be great? If I could be envied by non-disabled people.
Yes – envy’s bad! I shouldn’t want to be envied. I should want inclusion. Justice. Equality. I should want respect, love, acceptance.
Of course I want all that. But I want more.
I want to be envied by non-disabled people. Not admired. Envied.
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Disabled People Have Waited 30 Years to #PeeToo: Protect the ADA and Tell Congress to Vote NO on HR 620

In a hurry to contact California co-sponsors to say #HandsOffTheADA? DREDF has contact info and scripts.

THE ADA PASSED IN 1990. DISABLED PEOPLE STILL DO PEE MATH IN 2018. THAT ADDS UP TO INJUSTICE. TOILET ACCESS DELAYED IS TOILET ACCESS DENIED CONTACT YOUR REPRESENTATIVE BEFORE THEY VOTE THE WEEK OF FEB. 12: SAY VOTE NO ON #HR620, THE ADA EDUCATION AND “REFORM” ACT OF 2017 IF YOU DON’T GET WHY WE’RE TAKING ACTION TO STALL HR 620 YOU TRY HOLDING IT FOR 30 YEARS DREDF.ORG/HR620/


“Where, after all, do universal human disability rights begin? In too-small bathrooms, of necessity close to home – so close and so small that they still cannot be seen on any radar of Rep. Speier and way too many California representatives.”

It is profoundly demoralizing that Rep. Speier and other California members of Congress are cosponsoring .

Imagine that you have a harasser. Imagine that never know whether he will block you from getting into the public bathroom you need — sometimes pretty badly! — or not.

Imagine hearing that your harasser deserves 6 months to make “reasonable progress” toward not-harassing you — as much. After you wait 6 months, maybe you’ll be allowed to say NO to your harasser. Maybe.

Imagine your Representative is  championing your harasser’s excuse that it’s really hard to not harass you: “You have to understand that, yes, he knows what he’s doing has been against the law for almost 30 years but he needs more education.”

Access to a toilet is about dignity and safety whether the barrier is a harasser or a narrow door.

The ADA has been the law of the land for nearly 30 years and the only “reform” it needs is significantly greater enforcement. Disabled people in 2018 still can’t count on something as basic as a toilet in public spaces. If you don’t think there’s a cumulative effect of never knowing where your next pee can actually take place, you try holding it through 30 years of work-related business trips, restaurant meals, and meetings. Continue reading

HAIL ZUKAS: “HALE” Profiles a Low-Profile Disability Rights Pioneer and Co-Founder of the Center for Independent Living (CIL)

Movie poster for the film "Hale" that has a b/w archival photo of Hale Zukas in profile, at work, and using his headstick to type. HALE is in large red letters over white type: Changing the world one letter at a time. Directed by Brad Bailey. Additional text is unreadable to me but shows 2 prestigious film hoors.

Copyright Brad Bailey 2017

I live in an unusual household: Hale Zukas is a household name in it. But that’s what happens when your spouse not only knows his disability history but many of its people (like Hale), and you happen to work with another transportation powerhouse.
Fortunately, filmmaker Brad Bailey has made an award-winning documentary profiling this low-profile disability policy pioneer, team player, and organizer for the 504 sit-in protest. But make no mistake — Hale’s low-profile comes from staying immersed in the details of policy and regulatory work. He has been — and this is key — a dreaded name by anyone who opposed accessible transit. For certain officials, there have long been six words they just don’t want to hear in connection to public accommodations: “Hale Zukas is on the line.”
BAMPFA included “Hale” in its “Visualizing the World” series last night on 1/22. I had been planning to see it but could not — and I missed a strangely satisfying opportunity to celebrate Hale Zukas on the eve of Ed Roberts Day — pre-gaming it, so to speak. Ed Roberts is often mistakenly credited with co-founding the original-flavor Center for Independent Living (CIL), but Hale really is a co-founder. He got there first.  Brad Bailey describes him as a workhorse of the disability rights movement. See the film and see why for yourself. 
Rumor has it the film will be show again in Berkeley again in February. I plan to be there.  

Top 10 Reasons Why Focusing on White Students With Disabilities Is Not Acceptable Policy Strategy. In DC or Anywhere.

Lisa Simpson throwing up her hands in horror

I used this very same image for another post and darned if it isn’t perfect for this one, too! Courtesy Fox.

10. Because it’s racist. (In a rush? You can stop here!)
9. Because education policy is entwined with juvenile justice and incarceration policies for students of color with disabilities and, funny thing, disabled advocates of color think those issues are kind of urgent.
8. Because we lack the nanotechnology to measure the moral integrity of erasing students of color with disabilities from the very issue that derails and destroys their lives in vastly disproportionate numbers.
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D’Oh! Undermining the ADA Will Hurt Ordinary Americans

Since there are were a number of Democrats in Congress who are still not grokking that their vote voting for H.R. 620, the ADA Notification Act, is a vote against civil rights and disabled Americans, I’m going to show this absurd bill in action against real Americans.
By showing it in action against those really-real Americans, The Simpsons.
Lisa Simpson throwing up her hands in horror

“WHAT??? Democrat Representative Jackie Speier co-sponsored H.R. 620, the ADA Notification Act, that undermines vital civil rights protections for millions of disabled Americans?! HOW DID WAL-MART GET TO YOU, JACKIE???”?

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