deathstyles of the rich & abled, end-of-life merch, male-pattern bs
Look, I’m a long, faintly pink line that starts just the above the shoulder blades and ends above the ass-crack. Yeah I’m real sorry about offending your delicate sensibilities. I moved in when my landlady was about 13 and had had a spinal fusion cause her scoliosis was out. of. control. Whereas I held things together.
I was a lot more colorful in those days. A lot more sensitive. Cut nerves I can handle though. But I’m supposed to accept I’m shameful? I’m not exactly blaming my landlady, who was a teenager at the time, for trying to find bathing suits and a prom dress that would hide as much of me as possible. She was a new driver still looking for an unmarked exit off the Bullshit Highway.
Remember, all I am is a pink line, with the tiniest smidge of a ridge, on a person’s back. We’re not talking about a sucking chest wound. Or pus. Or whatever’s wrong with Steve Bannon’s complexion. I’m not asking to be a big deal, I’m not asking for attention, for cripes sakes. It’d just be nice to get out and get some freaking fresh air once in a while, you know?
But nooooooo, I’m a SCAR and I must be hidden. Continue reading
Individuals who depend on recalled ventilators and other breathing devices manufactured by Philips Respironics have joined in a letter, along with over two dozen disability organizations, demanding that Philips repair or replace the devices. The recall was announced in June, stating that the devices were found to release potentially harmful particles and gasses, but offering little information and no timeline for corrective action.
I’m among the affected individuals and have been part of a small group of users organizing a response with the support of the New York Law School and its Civil Rights and Disability Justice Clinic. “Respiratory equipment is not like a car that’s faulty. You can stop driving the car, but you can’t just postpone breathing. So we were given a really ridiculous thing that they called a choice, which was use it or don’t,” I told The Verge.
Update: Philips announced a repair and replacement program for one of their recalled models, the DreamStation, on September 1, 2021.
The full text of the group’s press release follows. Continue reading