What #CripLit Means To Me (and How It Differs From #DisLit)

Crip Lit Let disability entertain you www.talesfromthecrip.org

Crip lit entertains you. It doesn’t explain disability.

Too basic?…

What #CripLit Means To Me (and how it differs from #DisLit) 1. In #CripLit, at least one main character has a disability and the narrator is aware of its political dimension. 2. In #CripLit, living with a disability can be described through the narrator's point of view, not just the character's, and this can provide stylistic opportunities. 3. In #CripLit, a disabled character can be deeply flawed, unlikable, or foolish, and is not obligated to be an advocate, inspiration, or role model in fictional clothing. 4. In #CripLit, an anti-hero can have a disability that is integrated into their character. 5. In #CripLit, the story does not seek to educate the reader about the mechanics of living with a disability and does seek to describe a fullness of experience, whether wholly or partially imagined. © 2016 talesfromthecripblog.com

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#CripLit Excerpt from “The Copier God Unleashes the Flood Waters”

Another Excerpt From There's No Cure for Gretchen Lowe a novelAs the West-Hesperidan Free Clinic’s Administrative Manager, Gretchen was the closest thing they had to fundraising staff now that their Director was on stress leave. She was supposed to represent the clinic at these house party things but here she was wandering on the edges, again, frankly worn out just from hauling herself in the door. Here was a question: Why does philanthropy so often require climbing stairs?

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The Top 10 Reasons Why Medically Stunting the Growth of Girls With Severe Disabilities Continues To Be an Ethical and Well-Thought-Out Solution To the Problem of Financially Stunting Public Funding for In-Home Social Services, Which Is…Huh, How ‘Bout That.

5. Because we need to support the decisions of overburdened parents/caregivers of severely disabled children right up until the time when their decisions require public funding for adequate and affordable in-home supports.

It’s feels like it’s 2007 all over again, what with “growth-attenuation therapy” for severely disabled children – many of whom are girls – being back in the news.  And today, just like then, people with disabilities are trying to make this all about them. But there’s no unrecognized ableism framing this “ethical debate.” It’s not as though fearful parents who really do care about their children — who really are severely disabled — are being given an absurd and brutal choice:

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This Labor Day, Let’s Commit to Wiping Out the Charity Model for All People With Disabilities in Our Lifetime

Photo of Jerry Lewis with his infamous quote about how muscular dystrophy would make him half a person.

When your organization’s fundraising tactics undermine your mission – as dehumanizing your own people does – your fundraiser efforts can only be judged a failure. No matter how much money you raise.

This Labor Day weekend has me feeling celebratory because there’s no Muscular Dystrophy Association (MDA) Telethon on the air for the first time in 49 years.
This is great. If you’ve got that particular diagnosis. If you don’t, you may still have a problem. If, say, you’re diagnosed with autism. People with autism are still dealing with the same dynamic of destructive messages in the fundraising that purports to help them.
Criticizing how funds are raised generates a whole lot of anger if the critics are among those who are said to benefit from the efforts.  That’s why cross-disability solidarity, disability history, and telling our own stories are so important. The medical model of disability would keep us separated by diagnoses — different and disconnected — but the social model can bring us together — unique and united — through common concerns for our rights.
I’ve said it before and it’s still true: “I look at fundraising as a means of not just supporting social change but in promoting it as well. How we raise money says a lot about our attitudes toward the cause we want to fund.”

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