An Open Letter to Advocacy Funders: #FundDisAdvocacy Because Disability + Ableism = Structural Discrimination

 

Want in on the conversation about ableism? Check out what disabled advocates, civil and human rights activists, and philanthropic leaders had to say at the Twitter chat on 10/12/18 about philanthropy and inclusion. Then make your voice heard at #FundDisAdvocacy.


A Crip in PhilanthropyFoundation funding for disability advocacy dropped 23% between 2011-2015. Disabled people were the only group to see a decrease. Most funders are “aware” of disability but do they see ableism and structural discrimination? How do we make funders see disability civil and human rights as areas of actionable, urgent advocacy? A first step is recognizing disability as a constant but hidden set of variables in nearly all formulas for civil and human rights. 

I’m writing to you in my capacity as a community organizer – which is another name for a social justice fundraiser.
I believe you and I share common ground on the importance of advocacy:
We know that the great civil and human rights gains of the last century, envisioned and organized by the grassroots, were built to last through the courts and legislation, and they will continue to be the battlefields for preserving them.
I’m writing because disability civil and human rights advocacy is missing from your funding portfolios.
The first step in changing that is frank communication.

When you do not explicitly say “disability” in funding advocacy, you send a message to us: Deny, disown, and downplay your disability identity. That denies all marginalized communities access to our hard-won legal tools and, worse yet, our expertise in using them.


You may understand this letter, at first, as pertaining to a discrete group: disabled people. But it is a fundamental mistake to think that civil and human rights for any community can be fully achieved if we neglect, forget, or disregard such a basic human condition as disability and allow it to be the “natural” cause of poverty and abuse. If we are not safe or free to be vulnerable, then we cannot call ourselves safe or free. Our society is not safe or free.

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The NotPeople Magazine Cluelessest Man Alive Interview: Harper’s Rick MacArthur Gets Notpersonal With Janky Wheelchair About John Hockenberry, Disability, and #MeToo

"WE'RE NOT THAT SMART!" Katie Roiphe Begs Her Many Reader to Believe She's Not Colluding With John Hockenberry to Destroy Harper's; NotPeople; "Special" Crossover Issue With THE SIT-DOWN's Janky Wheelchair; Cluelessest Man Alive! RICK "NOT THE GENIUS" MACARTHUR; CRIPSPLAINS HOW WHEELCHAIRS PREVENT SEX HARASSMENT AND WHY DISABILITY + #METOO IS HI-LAR-I-OUS'; © 2018 talesfromthecrip.org

Photo courtesy Spectator

He strides into the cafe we’ve agreed to meet at. Leggy, silver-tressed, with creamy skin lightly dusted with freckles, Harper’s president and publisher Rick MacArthur is a knock-out at 62 even in the rumpled khakis that glide over his still-boyish hips. When he collapses into a chair, he lays a Trapper Keeper on the table, murmuring that it’s ten times better than that [bleeped] phone nonsense.

Announcing that this is his cheat day — “I learned recently this referred to food!” — he peruses the menu — “This menu’s paper quality is fantastic, isn’t it?” — before ordering a green juice, bananas Foster, and a double Scotch. He asks me when the guy who’s doing the interview is going to show. He is adorable. He asks again, using the words, “Chop chop.” He’s everything this interview said he’d be.

I’m still mesmerized by how stunning Rick MacArthur is, in person. The Author’s Guild photos don’t do him justice. I ask who dressed him for our interview and he gazes at me with fathomless confusion before laying his fingertips lightly on his shirt-front and saying, “I should know this! He’s worked for our family since before I was born. He’s going to be so mad at me. Not that he’ll ever express it.”


As the long-awaited second installment of Tales From the Crip’s series, Imaginary Interviews With People Who We Wish Were Imaginary, our new FuckAbility™ Research Council‘s Crip Carpet Correspondent, Janky Wheelchair, follows up on TryHarder™ Magazine’s recent take-down of John Hockenberry’s journaling essay, “Exile,” by devoting an entire episode of THE SIT-DOWN to publisher of the essay, Harper’s Rick MacArthur.
Photo of a janky wheelchair and text: The FuckAbility TM Research Council Presents The Sit-Down Hosted By Janky Wheelchair Copyright 2018 talesfromthecrip.org

Janky Wheelchair portrait courtesy of hiveminer.com/User/klickertrigger

The vivacious magnate talks nonstop about why paraplegics can’t sexually harass anyone; why he, a Francophile, is launching a Moi Aussi men’s movement to counter Me Too’s “Soviet-style” excesses; why paper is the future of Harper’s; and how everyone forgets how great John Hockenberry was in the film Coming Home. Keep reading for the unedited transcript of Janky Wheelchair’s exclusive hard-hitting interview with lively minx Rick MacArthur.

Flambee your bananas and keep the Scotch flowing because Harper’s RICK MACARTHUR is gracing the cover of NotPeople magazine as the CLUELESSEST MAN ALIVE! 


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And Now a Word From the FuckAbility™ Research Council on Top Chef, Season 15, Episodes 5 and 6

In Which the FuckAbility™ Research Council DisRespectfully Suggests Tom Colicchio Was High When He Allowed a Cooking Challenge to be Held at 7,500 Feet Above Sea Level Given That One Cheftestant Was Pregnant and Two Others Were Using C-PAPs

Please pack your ableism and go

(The Height of Ignorance, CO)  In a shocking twist, a pregnant woman and two men who don’t breathe great found this week’s battle to be a literally uphill one when they were dumped on a friggin’ mountaintop site where Lando Calrissian is planning to break ground for his Cloud City Diner. The guest judge, Ivan Denisovich Shukhov, announced the week’s challenge: Make a truly memorable dish for your own memorial service.

And — as every *real* chef should be able to do — pitch a tent in deep snow, walk around in the snow, endure freezing temperatures for over 24 hours, and manipulate sharp implements with exposed hands.

it’s even money at this point whether top chef knows that the “chilling effect” of asinine workplace practices and attitudes on women and disabled workers won’t be corrected with a thermostat.

With all due dis-respect to restaurant kitchen tradition and gulags everywhere, fuck that noise. Just because Leann still won episode 5 doesn’t make it acceptable that she had to forfeit the rest of the competition in episode 6. Seriously, she’s a fucking powerhouse and you fucked with the career trajectory of a hard-working woman chef of color. Yeah, she knew what the challenge was and, yeah, it was her pregnancy. So? That’s quite a fucking choice for her, isn’t it?

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HEY! YOU! MEDIA!: Let’s Make Suicide Awareness Month and World Suicide Prevention Day Inclusive of People With Disabilities

5.  Why is suicide being presented as a solution, rather than a problem, when the people involved have disabilities?

September is Suicide Awareness Month and September 10 is World Suicide Prevention Day. I’m writing this because media coverage over the past year alone seems to warrant an explicit reminder that:

  • We don’t lack awareness of people with disabilities committing suicide; we do allow vulnerable people to feel shame over chronic pain and depression.
  • Our suicides deserve prevention, not encouragement and cultural misrepresentation, as in films such as Me Before You.

What’s the context beyond the medical? What are the underlying attitudes guiding how the media’s coverage of people with disabilities who have committed suicide or who are planning to do so?

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