I Remember This: The Girls With the Black Bars Over Their Faces

2 side by sde b/w photos of a young white woman wearing only a Milwaukee back brace, with black bars covering her eyes and breasts. On the left is her back, on the right, she's in profile.

Source: researchgate.net: (Reprinted from Blount WP, Schmidt AC, Bidwell RG. Making the Milwaukee brace. J Bone Joint Surg Am. 1958;40:526–528 with permission from Journal of Bone and Joint Surgery, Inc., Needham, MA.)


1977. I am 11 years old. I am half-naked in a crowded hospital hallway.

I’ve gotten ten steps down the hall from the exam room where my mother is waiting before I fully appreciate that my fish-white thighs are fully on display.
My thighs are doing their best to walk the rest of me onward. The rest of me is wearing underpants, an all-too-sheer white t-shirt, and a Milwaukee back-brace.
The words, You are half-naked in public, explode in my mind like a bad-dream bomb.
Continue reading

I Remember This: I Am Thirteen and in the Recovery Room After Spinal Fusion Surgery

Cover of Mythology by Edith HamiltonYou are flat on your back under a glaring light. The bed is hard. It hurts. You don’t move because it doesn’t occur to you to do so, it’s so far beyond you. Each part of you that registers – reports in, so to speak – registers through pain. You body is mapped as a topography of pain. No face or distinguishing characteristics. You are a ground-colored shape dotted with points of glaring, popping pain. Where your head aches on the stone-stab mattress, where the gravel of the sheet is under your arms, where it rasps all along the tube that snakes down your throat, to an unidentifiable pressure on your front, low down.
Your back. Oh. Your back is a barely contained thorn patch in a mad stabber’s arsenal.
You’re not alone. There are voices, professional ones. But no one is talking to you.
There is a nurse above you, meeting your eyes. Her head blocks the light. “You’re awake,” she says. “You’re in the recovery room.”
You make a sound. It sounds dreadful. The first sound Frankenstein made on his slab. The thought of the monster brings back your past, all there was before this light, this slab, this pain. And the face in your reunion with memory itself is: Gene Wilder in Young Frankenstein.
Continue reading

I’m Not Finished: Corn on the Cob, Greece, NY; Late July 1970

Photo of 2 blue and white dinner plates. Text: I'M NOT FINISHED, a personal encyclopedia gluttonica by Ingrid Tischer talesfromthecrip.org

Image courtesy eBay

The question of whether early gluttony for, say, corn on the cob is an innate or acquired trait is just the sort of debate that misses the point entirely. To paraphrase the elegant  MFK Fisher: When I write about gluttony, I am writing about a gluttony for joy, a gluttony for excellence, and — frequently — a gluttony for any foodstuff bathed with melted butter.

A beautiful ear of fresh bi-color corn still half in the husk

 

Continue reading

My Speech to the Graduates, or What I Wish I’d Known As a 5 Year-Old Crip

Ingrid Tischer on the day of her kindergarten graduation in Greece, New York, circa 1969. She is wearing a rainbow vest and skirt sown by her mom. Note the clutching of the diploma and school-bestowed book-bag, and anxious expression -- all indicate a future in literary fiction writing and nonprofit fundraising.

Ingrid Tischer on the day of her kindergarten graduation in Greece, New York, circa 1970. She is wearing a rainbow vest and skirt sewn by her mom. Note the clutching of the diploma and school-bestowed book-bag, and anxious expression — all indicate a future in literary fiction writing and nonprofit fundraising.


If the grand success of the 20th century was the rise of disability as an accepted political identity, we intend for the 21st century to be the time when disability is recognized as the constant but hidden variable in nearly all formulas for global human rights.
Including disability as a given factor in most people’s lives is essential to successfully advancing the human rights of people in minority communities; survivors of violence in the home, the school, and the street, and/or conflict zones, and as veterans; immigrant and refugees held in detention, incarcerated people, people coerced into institutionalization; people who live with chronic and catastrophic illness; neuro-diverse people; people who are young and old; male, female, and everywhere on the gender spectrum.
While disability has been understood as “different and divided” I believe it can come to be seen as “unique and united.”

As you sit sweating under an increasingly sweltering sun this day, feeling the inevitable effects of a wasteful attitude toward natural resources, you may not be thinking of another type of catastrophic loss caused by another type of massive denial. I speak of almost no one’s favorite topic: Disability.

How denying disability’s central role in just about every human life relegates significant chunks of our lives — and worse still, people-sized chunks — to the rubbish heap. It may be that “disabled” doesn’t feel like a word that fits who you are. Fine. Have you ever felt vulnerable? Think of “vulnerable” as a gateway word to a chronic case of disability-speak.

Continue reading