HAIL ZUKAS: “HALE” Profiles a Low-Profile Disability Rights Pioneer and Co-Founder of the Center for Independent Living (CIL)

Movie poster for the film "Hale" that has a b/w archival photo of Hale Zukas in profile, at work, and using his headstick to type. HALE is in large red letters over white type: Changing the world one letter at a time. Directed by Brad Bailey. Additional text is unreadable to me but shows 2 prestigious film hoors.

Copyright Brad Bailey 2017

I live in an unusual household: Hale Zukas is a household name in it. But that’s what happens when your spouse not only knows his disability history but many of its people (like Hale), and you happen to work with another transportation powerhouse.
Fortunately, filmmaker Brad Bailey has made an award-winning documentary profiling this low-profile disability policy pioneer, team player, and organizer for the 504 sit-in protest. But make no mistake — Hale’s low-profile comes from staying immersed in the details of policy and regulatory work. He has been — and this is key — a dreaded name by anyone who opposed accessible transit. For certain officials, there have long been six words they just don’t want to hear in connection to public accommodations: “Hale Zukas is on the line.”
BAMPFA included “Hale” in its “Visualizing the World” series last night on 1/22. I had been planning to see it but could not — and I missed a strangely satisfying opportunity to celebrate Hale Zukas on the eve of Ed Roberts Day — pre-gaming it, so to speak. Ed Roberts is often mistakenly credited with co-founding the original-flavor Center for Independent Living (CIL), but Hale really is a co-founder. He got there first.  Brad Bailey describes him as a workhorse of the disability rights movement. See the film and see why for yourself. 
Rumor has it the film will be show again in Berkeley again in February. I plan to be there.  

HEY! YOU! MEDIA! Top 5 Notes to Anderson Cooper Regarding His 60 Minutes Hit Piece That I Shot B-Roll For Once Upon a Time When It Was Going To Be About the ADA’s 25th

60 Minutes Came to the Bay Area, birthplace of the Independent Living movement — a largely unknown chapter of US civil rights history — for footage for a piece about the 25th anniversary of the Americans with Disabilities Act (ADA).
They filmed me, moving about the Ed Roberts Campus (ERC), where I work at Disability Rights Education & Defense Fund (DREDF), an ERC founding partner.
They filmed other members of the cross-disability community.
And they used that footage to undermine and dishonor the law that made me — a woman with a disability — a full citizen in 1990.
60 Minutes came to OUR house, used us, and told the world people with disabilities are either dupes, greedy, or both.

Top 5 Notes to Anderson Cooper Regarding His 60 Minutes Hit Piece That I Shot B-Roll For Once Upon a Time When It Was Going To Be About the ADA’s 25th

Segment also provides excellent instruction in “How to add insult to injury” by failing to caption its online streaming video

1. If an access violation is so obvious it can be found through Google’s aerial view, then, yeah, I expect a business owner to be able to find it.

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This Labor Day, Let’s Commit to Wiping Out the Charity Model for All People With Disabilities in Our Lifetime

The medical model of disability would keep us separated by diagnoses — different and disconnected — but the social model can bring us together — unique and united — through common concerns for our rights.
This Labor Day weekend has me feeling celebratory because there’s no Muscular Dystrophy Association (MDA) Telethon on the air for the first time in 49 years.
This is great. If you’ve got that particular diagnosis. If you don’t, you may still have a problem. If, say, you’re diagnosed with autism.
People with autism are still dealing with the same dynamic of destructive messages in the fundraising that purports to help them.
Criticizing how funds are raised generates a whole lot of anger if the critics are among those who are said to benefit from the efforts.  That’s why cross-disability solidarity, disability history, and telling our own stories are so important. The medical model of disability would keep us separated by diagnoses — different and disconnected — but the social model can bring us together — unique and united — through common concerns for our rights.
I’ve said it before and it’s still true: “I look at fundraising as a means of not just supporting social change but in promoting it as well. How we raise money says a lot about our attitudes toward the cause we want to fund.”

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