disability rights
Disabled People Have Waited 30 Years to #PeeToo: Protect the ADA and Tell Congress to Vote NO on HR 620
In a hurry to contact California co-sponsors to say #HandsOffTheADA? DREDF has contact info and scripts.
“Where, after all, do universal human disability rights begin? In too-small bathrooms, of necessity close to home – so close and so small that they still cannot be seen on any radar of Rep. Speier and way too many California representatives.”
It is profoundly demoralizing that Rep. Speier and other California members of Congress are cosponsoring #HR620.
Imagine that you have a harasser. Imagine that never know whether he will block you from getting into the public bathroom you need — sometimes pretty badly! — or not.
Imagine hearing that your harasser deserves 6 months to make “reasonable progress” toward not-harassing you — as much. After you wait 6 months, maybe you’ll be allowed to say NO to your harasser. Maybe.
Imagine your Representative is championing your harasser’s excuse that it’s really hard to not harass you: “You have to understand that, yes, he knows what he’s doing has been against the law for almost 30 years but he needs more education.”
Access to a toilet is about dignity and safety whether the barrier is a harasser or a narrow door.
The ADA has been the law of the land for nearly 30 years and the only “reform” it needs is significantly greater enforcement. Disabled people in 2018 still can’t count on something as basic as a toilet in public spaces. If you don’t think there’s a cumulative effect of never knowing where your next pee can actually take place, you try holding it through 30 years of work-related business trips, restaurant meals, and meetings. Continue reading
HAIL ZUKAS: “HALE” Profiles a Low-Profile Disability Rights Pioneer and Co-Founder of the Center for Independent Living (CIL)
I live in an unusual household: Hale Zukas is a household name in it. But that’s what happens when your spouse not only knows his disability history but many of its people (like Hale), and you happen to work with another transportation powerhouse.
Fortunately, filmmaker Brad Bailey has made an award-winning documentary profiling this low-profile disability policy pioneer, team player, and organizer for the 504 sit-in protest. But make no mistake — Hale’s low-profile comes from staying immersed in the details of policy and regulatory work. He has been — and this is key — a dreaded name by anyone who opposed accessible transit. For certain officials, there have long been six words they just don’t want to hear in connection to public accommodations: “Hale Zukas is on the line.”
BAMPFA included “Hale” in its “Visualizing the World” series last night on 1/22. I had been planning to see it but could not — and I missed a strangely satisfying opportunity to celebrate Hale Zukas on the eve of Ed Roberts Day — pre-gaming it, so to speak. Ed Roberts is often mistakenly credited with co-founding the original-flavor Center for Independent Living (CIL), but Hale really is a co-founder. He got there first. Brad Bailey describes him as a workhorse of the disability rights movement. See the film and see why for yourself.
Rumor has it the film will be show again in Berkeley again in February. I plan to be there.
Pride and Prejudice: Part Two of Why I Oppose Assisted Suicide Legislation
It is a truth universally acknowledged that a woman in possession of a neurodegenerative disease must be in want of an early death.
My dear Miss Cripple,
Madam, in vain I have struggled. It will not do. My feelings will not be repressed. You must allow me to tell you how ardently I pity you and plead you to accept my assistance in hastening your death.