What #CripLit Means To Me (and How It Differs From #DisLit)

Crip Lit Let disability entertain you www.talesfromthecrip.org

Crip lit entertains you. It doesn’t explain disability.

Too basic?…

What #CripLit Means To Me (and how it differs from #DisLit) 1. In #CripLit, at least one main character has a disability and the narrator is aware of its political dimension. 2. In #CripLit, living with a disability can be described through the narrator's point of view, not just the character's, and this can provide stylistic opportunities. 3. In #CripLit, a disabled character can be deeply flawed, unlikable, or foolish, and is not obligated to be an advocate, inspiration, or role model in fictional clothing. 4. In #CripLit, an anti-hero can have a disability that is integrated into their character. 5. In #CripLit, the story does not seek to educate the reader about the mechanics of living with a disability and does seek to describe a fullness of experience, whether wholly or partially imagined. © 2016 talesfromthecripblog.com

Continue reading

#CripLit Excerpt from “The Copier God Unleashes the Flood Waters”

Another Excerpt From There's No Cure for Gretchen Lowe a novelAs the West-Hesperidan Free Clinic’s Administrative Manager, Gretchen was the closest thing they had to fundraising staff now that their Director was on stress leave. She was supposed to represent the clinic at these house party things but here she was wandering on the edges, again, frankly worn out just from hauling herself in the door. Here was a question: Why does philanthropy so often require climbing stairs?

Continue reading

The Top 10 Reasons Why Medically Stunting the Growth of Girls With Severe Disabilities Continues To Be an Ethical and Well-Thought-Out Solution To the Problem of Financially Stunting Public Funding for In-Home Social Services, Which Is…Huh, How ‘Bout That.

5. Because we need to support the decisions of overburdened parents/caregivers of severely disabled children right up until the time when their decisions require public funding for adequate and affordable in-home supports.

It’s feels like it’s 2007 all over again, what with “growth-attenuation therapy” for severely disabled children – many of whom are girls – being back in the news.  And today, just like then, people with disabilities are trying to make this all about them. But there’s no unrecognized ableism framing this “ethical debate.” It’s not as though fearful parents who really do care about their children — who really are severely disabled — are being given an absurd and brutal choice:

Continue reading

2016 Ramp-up to the White House: 5 Questions for the Democratic Candidates for Crip-in-Chief

“If Lincoln and FDR were hanging out with a bunch of crips and you wanted to join them, what would you bring to the disability table?”

While voting access will continue to be a disability rights issue,  here are key questions that address your readiness to be Crip-in-Chief. Please note that any answer in the form of inspiration porn will immediately disqualify you.

Question #1:  It’s 3AM in the White House (as it is everywhere in that time zone). The phone rings.  It’s Sylvia Burwell, the head of DHHS that oversees the Centers for Medicare and Medicaid Services (CMS). CMS is STILL sending printed forms to blind consumers and crips are not just pissed but suing. Explain how you get that this is emblematic of being a person with a disability: Most people think disability = sick = great healthcare access when it does not. Then explain your civil rights approach to such structural disability discrimination, how you will engage cross-disability advocates, and how your Obamacare/single-payer system will prevent such debacles.

Question #2:  Human worth in our country has long been measured by participation in the paid workforce. How will you promote a culture of respect backed by legal protections  for people who are unlikely to join or rejoin the paid workforce — a vast coalition that includes some adults who identify as “disabled;” adults with chronic health conditions, survivors of trauma, violence, and conflict zones;  many older people and veterans, parents (particularly mothers); and all (we hope) children.

Question #3:  Young people with disabilities today are being told that they should expect to find be a paying job. This is great — sort of.  Their success is presented as being fundamentally a matter of overcoming their own attitudes and disabilities. But many — particularly youth of color — are systematically denied an education and shoved into the school-to-prison pipeline. How are you going to dismantle the infrastructural  and intersectional barriers to employment that persist: lack of access to education,  housing, transportation, in-home supports? How will you shift the country from a “special needs” lens to an “equal rights” lens?

Question #4:  Explain how, as a pro-choice candidate, you would ensure women with disabilities and all queer people with disabilities (quips!) truly have choices with regard to their own sexual agency, pregnancy, parenting, and custody disputes. And how would you address the implicit ableism that frequently presents the decision to bear and parent a child with a disability as a cost-benefit analysis — and a rigged one, at that?

Question #5:  In a time of economic inequality, lost faith in a for-profit healthcare industry, and increasing elder abuse, assisted suicide legislation is gaining ground as a personal liberty rather than a public health issue.  Again, this is a question about policy  and medical standards of care affecting millions of diverse people, not an individual belief system. Do you support laws that indemnify physicians who prescribe lethal drugs but don’t require any medical provider or trained personnel to monitor, attend, follow-up if/when the consumer uses them?

Bonus Question: Two transformative presidents, Lincoln and FDR, lived with disabilities. Like many Americans today, neither identified as “disabled,” but their respective Administrations nevertheless reflected a deep understanding of another term for “disabled”: “vulnerable.” If Lincoln and FDR were hanging out with a bunch of crips and you wanted to join them, what would you bring to the disability table?

Remember: Our civil rights matter and so do our votes!

 

 

Pride and Prejudice: Part Two of Why I Oppose Assisted Suicide Legislation

It is a truth universally acknowledged that a woman in possession of a neurodegenerative disease must be in want of an early death.

 My dear Miss Cripple,mr. darcy

Madam, in vain I have struggled. It will not do. My feelings will not be repressed. You must allow me to tell you how ardently I pity you and plead you to accept my assistance  in hastening your death.

Continue reading