HAIL ZUKAS: “HALE” Profiles a Low-Profile Disability Rights Pioneer and Co-Founder of the Center for Independent Living (CIL)

Movie poster for the film "Hale" that has a b/w archival photo of Hale Zukas in profile, at work, and using his headstick to type. HALE is in large red letters over white type: Changing the world one letter at a time. Directed by Brad Bailey. Additional text is unreadable to me but shows 2 prestigious film hoors.

Copyright Brad Bailey 2017

I live in an unusual household: Hale Zukas is a household name in it. But that’s what happens when your spouse not only knows his disability history but many of its people (like Hale), and you happen to work with another transportation powerhouse.
Fortunately, filmmaker Brad Bailey has made an award-winning documentary profiling this low-profile disability policy pioneer, team player, and organizer for the 504 sit-in protest. But make no mistake — Hale’s low-profile comes from staying immersed in the details of policy and regulatory work. He has been — and this is key — a dreaded name by anyone who opposed accessible transit. For certain officials, there have long been six words they just don’t want to hear in connection to public accommodations: “Hale Zukas is on the line.”
BAMPFA included “Hale” in its “Visualizing the World” series last night on 1/22. I had been planning to see it but could not — and I missed a strangely satisfying opportunity to celebrate Hale Zukas on the eve of Ed Roberts Day — pre-gaming it, so to speak. Ed Roberts is often mistakenly credited with co-founding the original-flavor Center for Independent Living (CIL), but Hale really is a co-founder. He got there first.  Brad Bailey describes him as a workhorse of the disability rights movement. See the film and see why for yourself. 
Rumor has it the film will be show again in Berkeley again in February. I plan to be there.  

And Now a Word From the FuckAbility™ Research Council on Top Chef, Season 15, Episodes 5 and 6

In Which the FuckAbility™ Research Council DisRespectfully Suggests Tom Colicchio Was High When He Allowed a Cooking Challenge to be Held at 7,500 Feet Above Sea Level Given That One Cheftestant Was Pregnant and Two Others Were Using C-PAPs

Please pack your ableism and go

(The Height of Ignorance, CO)  In a shocking twist, a pregnant woman and two men who don’t breathe great found this week’s battle to be a literally uphill one when they were dumped on a friggin’ mountaintop site where Lando Calrissian is planning to break ground for his Cloud City Diner. The guest judge, Ivan Denisovich Shukhov, announced the week’s challenge: Make a truly memorable dish for your own memorial service.

And — as every *real* chef should be able to do — pitch a tent in deep snow, walk around in the snow, endure freezing temperatures for over 24 hours, and manipulate sharp implements with exposed hands.

it’s even money at this point whether top chef knows that the “chilling effect” of asinine workplace practices and attitudes on women and disabled workers won’t be corrected with a thermostat.

With all due dis-respect to restaurant kitchen tradition and gulags everywhere, fuck that noise. Just because Leann still won episode 5 doesn’t make it acceptable that she had to forfeit the rest of the competition in episode 6. Seriously, she’s a fucking powerhouse and you fucked with the career trajectory of a hard-working woman chef of color. Yeah, she knew what the challenge was and, yeah, it was her pregnancy. So? That’s quite a fucking choice for her, isn’t it?

Continue reading

Top 10 Reasons Why Focusing on White Students With Disabilities Is Not Acceptable Policy Strategy. In DC or Anywhere.

Lisa Simpson throwing up her hands in horror

I used this very same image for another post and darned if it isn’t perfect for this one, too! Courtesy Fox.

10. Because it’s racist. (In a rush? You can stop here!)
9. Because education policy is entwined with juvenile justice and incarceration policies for students of color with disabilities and, funny thing, disabled advocates of color think those issues are kind of urgent.
8. Because we lack the nanotechnology to measure the moral integrity of erasing students of color with disabilities from the very issue that derails and destroys their lives in vastly disproportionate numbers.
Continue reading

D’Oh! Undermining the ADA Will Hurt Ordinary Americans

Since there are were a number of Democrats in Congress who are still not grokking that their vote voting for H.R. 620, the ADA Notification Act, is a vote against civil rights and disabled Americans, I’m going to show this absurd bill in action against real Americans.
By showing it in action against those really-real Americans, The Simpsons.
Lisa Simpson throwing up her hands in horror

“WHAT??? Democrat Representative Jackie Speier co-sponsored H.R. 620, the ADA Notification Act, that undermines vital civil rights protections for millions of disabled Americans?! HOW DID WAL-MART GET TO YOU, JACKIE???”?

Continue reading

And Now a Word From the FuckAbility™ Research Council on the Film Breathe

FuckAbility™ Research Council’s The DisHon. Hilaria Mirth-Sitwell on Crippling Whilst Posh in Breathe 

Noblesse cripplege, not suicide, is the duty of the upper classes

(Never-on-Thames, England) Mr Serkus’s Breathe is, throughout much of its duration, stoutly British. The central lovers are married to one another and the story refrains from any Lawrencian tendency to evoke the natural world in a throbbing manner, with its gamekeepers and their delicate ways with the lady pigeons. Nor does the film make sickness or injury itself a manifestation of character. Which is not to say that Mr Cavendish’s external journey of affliction is disconnected from his internal moral development. No, it is clear that there can be no overcoming without the hurdle, and our hero finds his way forward by not only embracing Mrs Cavendish but also his sense of duty.  I do admire resolve in the face of adversity and in this respect I say to the film, Well done.

Now, about this business of inspiration: The film is inspirational because it is about the development of inspiring equipment, which is to say, a breathing apparatus. But then there is the ending. One has just seen Mr Cavendish not only triumph over his respiratory insufficiency but help his fellows in suffering. At this moment, he chooses to commit suicide because he wishes to die on his own terms. Ordinarily one must read the lesser ancients, or the wholly American, to find a more blatant have-it-your-way message than the phrase,  on one’s own terms. Is there a more more plaintive call for Nanny than this proud proclamation that one shall have one’s cake and eat it, too? 

One might understand a young man, in the throes of a new invalidism, chucking it all. But a mature husband and father, one who is living a useful life? Such a person should not be such a wet about the dying aspect of it. It’s only death, for God’s sake. It will happen when it happens, like a beating from a prefect, so best get over it and move on.

Continue reading