2016 Ramp-up to the White House: 5 Questions for the Democratic Candidates for Crip-in-Chief

“If Lincoln and FDR were hanging out with a bunch of crips and you wanted to join them, what would you bring to the disability table?”

While voting access will continue to be a disability rights issue,  here are key questions that address your readiness to be Crip-in-Chief. Please note that any answer in the form of inspiration porn will immediately disqualify you.

Question #1:  It’s 3AM in the White House (as it is everywhere in that time zone). The phone rings.  It’s Sylvia Burwell, the head of DHHS that oversees the Centers for Medicare and Medicaid Services (CMS). CMS is STILL sending printed forms to blind consumers and crips are not just pissed but suing. Explain how you get that this is emblematic of being a person with a disability: Most people think disability = sick = great healthcare access when it does not. Then explain your civil rights approach to such structural disability discrimination, how you will engage cross-disability advocates, and how your Obamacare/single-payer system will prevent such debacles.

Question #2:  Human worth in our country has long been measured by participation in the paid workforce. How will you promote a culture of respect backed by legal protections  for people who are unlikely to join or rejoin the paid workforce — a vast coalition that includes some adults who identify as “disabled;” adults with chronic health conditions, survivors of trauma, violence, and conflict zones;  many older people and veterans, parents (particularly mothers); and all (we hope) children.

Question #3:  Young people with disabilities today are being told that they should expect to find be a paying job. This is great — sort of.  Their success is presented as being fundamentally a matter of overcoming their own attitudes and disabilities. But many — particularly youth of color — are systematically denied an education and shoved into the school-to-prison pipeline. How are you going to dismantle the infrastructural  and intersectional barriers to employment that persist: lack of access to education,  housing, transportation, in-home supports? How will you shift the country from a “special needs” lens to an “equal rights” lens?

Question #4:  Explain how, as a pro-choice candidate, you would ensure women with disabilities and all queer people with disabilities (quips!) truly have choices with regard to their own sexual agency, pregnancy, parenting, and custody disputes. And how would you address the implicit ableism that frequently presents the decision to bear and parent a child with a disability as a cost-benefit analysis — and a rigged one, at that?

Question #5:  In a time of economic inequality, lost faith in a for-profit healthcare industry, and increasing elder abuse, assisted suicide legislation is gaining ground as a personal liberty rather than a public health issue.  Again, this is a question about policy  and medical standards of care affecting millions of diverse people, not an individual belief system. Do you support laws that indemnify physicians who prescribe lethal drugs but don’t require any medical provider or trained personnel to monitor, attend, follow-up if/when the consumer uses them?

Bonus Question: Two transformative presidents, Lincoln and FDR, lived with disabilities. Like many Americans today, neither identified as “disabled,” but their respective Administrations nevertheless reflected a deep understanding of another term for “disabled”: “vulnerable.” If Lincoln and FDR were hanging out with a bunch of crips and you wanted to join them, what would you bring to the disability table?

Remember: Our civil rights matter and so do our votes!

 

 

Imagination and Empathy in the Age of Story-tellers With Disabilities

Crip Lit, Entertain. Don't explain. www.talesfromthecrip.orgWhat is it like to live with a disability? What do I want other people — younger people — to know? What do I see ahead? What are the ethical boundaries for telling other people’s stories?

These are some of the excellent questions posed by DearJulianna, #CrippingtheMighty, and #TheFutureIsDisabled. (Carrie Ann Lucas’s blog post currently carries the coveted — by me — title of, The Blog Post I Love Because It’s So Well-Written I No Longer Feel Like I Need to Take On This Difficult Topic Until I Want To.) People with disabilities are writing, reading, producing, performing, and arguing like nothing I’ve witnessed in 50 years. It’s wonderful and it makes me want to hide out under a blanket for a while and just let my mind wander.

When I can get enough mind-wandering time clocked, I work through stories that are the made-up kind: fiction. They’re stories that are “about” my life the way jambalaya is “about” sausage, rice, and a whole bunch of other stuff. I can’t seem to tell the truth without lying, which is “fiction” in a nutshell and why Hermes, that liar (and inventor of lyres), is the god of storytelling.

In terms of privacy, even badly written fiction is different from posting a detailed or disparaging description of your child who has a disability. But in thinking about who gets to write about who, and how, and why, I remembered a problem I’d had with conveying certain information about my main character, an adult woman with a disability. Me! Not me!

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Pride and Prejudice: Part Two of Why I Oppose Assisted Suicide Legislation

It is a truth universally acknowledged that a woman in possession of a neurodegenerative disease must be in want of an early death.

 My dear Miss Cripple,mr. darcy

Madam, in vain I have struggled. It will not do. My feelings will not be repressed. You must allow me to tell you how ardently I pity you and plead you to accept my assistance  in hastening your death.

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Fundraising and Inspiration Porn: How Does Your Messaging Rate on the Jerry Scale?

Screenshot from a Shriners' commercial of a young white boy in a manual chair.

The only disability in life is a bad attitude…until you factor in #inspirationporn like, “Love is…walking,” that Leo Burnett and Shriners’ thought was a super-appropriate slogan for a kid in a wheelchair to say. For Shriners’ fundraising stragedy campaign. For $$.

Sure, I’ve been critical of the charity fundraising model. Sure, I’ve had some harsh things to say about inspiration porn.  And, yes, I’ve argued that children with disabilities can be valuable comestibles.  None of that precludes me from providing a valuable Professional Fundraiser’s Assessment of the Shriners’ commercial above:

The problem with this ad for Shriners’ Hospital is that it doesn’t go far enough. It goes right up to the edge and hesitates.

Bottom line: If you’re not inspiring AND terrifying your audience, they’re not hearing why they should give to you to make you stop talking.

My 3-Point Pointers for Insperrifying™ Medical-Model Messaging (3M™)

  1. Love = Cure. You’ve laid the groundwork, now close the deal. You’ve got the kids believing love is about walking. Now have them say what you really mean: “My parents will hate me if I can’t walk!”
  2. Kids ♥ Begging. Whether it’s for a puppy or surgery, kids are world-class chin-tremblers. Yet you haven’t even given them the tools they need.  What, Shriners’ can’t afford a couple of tin cups?
  3. Follow Your Non-Bliss. On-camera talent should appear in naturalistic settings that echo your message of disability = despair. A seclusion room in a badly run public school.  Waiting at a stop where the bus rolls by them. Watching fundraising commercials for people “like that.”

Remember: Real World Fundraising™ measures itself on the Jerry Scale. On the Jerry Scale you have to scare to score!

Wishing you all a very happy #GivingTuesday on December 1st!

When It Comes to Inspiration Porn, “Role Model” Is My Most Effective Anti-Inspirant*

Meme that uses a Ban anti-perspirant photo with the words: Role Model Anti-Inspirant Prevents Inspiration Porn Odor

“I’ve found that being inspirational is a lonely business and
unconnected to true efforts or achievements. Being a role model has the pleasure of an honor that’s earned.”

I was asked a few years ago about how I felt being called an “inspiration” based on my identity as a woman with a disability. This was my response, based on events over three decades in the workforce, the majority spent in progressive, community-based nonprofits in the Bay Area where the cross-disability community still remained invisible and therefore marginalized:

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