This Labor Day, Let’s Commit to Wiping Out the Charity Model for All People With Disabilities in Our Lifetime

Photo of Jerry Lewis with his infamous quote about how muscular dystrophy would make him half a person.

When your organization’s fundraising tactics undermine your mission – as dehumanizing your own people does – your fundraiser efforts can only be judged a failure. No matter how much money you raise.

This Labor Day weekend has me feeling celebratory because there’s no Muscular Dystrophy Association (MDA) Telethon on the air for the first time in 49 years.
This is great. If you’ve got that particular diagnosis. If you don’t, you may still have a problem. If, say, you’re diagnosed with autism. People with autism are still dealing with the same dynamic of destructive messages in the fundraising that purports to help them.
Criticizing how funds are raised generates a whole lot of anger if the critics are among those who are said to benefit from the efforts.  That’s why cross-disability solidarity, disability history, and telling our own stories are so important. The medical model of disability would keep us separated by diagnoses — different and disconnected — but the social model can bring us together — unique and united — through common concerns for our rights.
I’ve said it before and it’s still true: “I look at fundraising as a means of not just supporting social change but in promoting it as well. How we raise money says a lot about our attitudes toward the cause we want to fund.”

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NotPeople Magazine Presents: Star Trek: The Next Intervention

NotPeople Magazine cover with a picture of a pleading Captain Jean-Luc Picard from Star Trek: The Next Generation. Top reads: "The Assisted Suicide Policy Intervention Issue!" Side-by-side with photos text: "Captain Picard Intervenes & It's Patrick Stewart HOT!"Captain’s Log: Stardate 20150808.naptime. The Enterprise is en route after refueling at Carnitas in the Al-Pastor system, but before reaching the Reflux Cluster, we’ve picked up a warning call from the Federation ship Ventilator. The decoded message tells us that a pro-assisted suicide ship, The Good Death, is in the vicinity. We’ve sent them the standard response, U-1st, but The Good Death remains as quiet as a tomb. Then it suddenly appeared on the Bridge’s screen.
Captain Picard on the bridge looking toward the screen.“Tell me what I’m looking at on the screen and how that man can STILL be so damnably handsome.”

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My Speech to the Graduates, or What I Wish I’d Known As a 5 Year-Old Crip

Ingrid Tischer on the day of her kindergarten graduation in Greece, New York, circa 1969. She is wearing a rainbow vest and skirt sown by her mom. Note the clutching of the diploma and school-bestowed book-bag, and anxious expression -- all indicate a future in literary fiction writing and nonprofit fundraising.

Ingrid Tischer on the day of her kindergarten graduation in Greece, New York, circa 1970. She is wearing a rainbow vest and skirt sewn by her mom. Note the clutching of the diploma and school-bestowed book-bag, and anxious expression — all indicate a future in literary fiction writing and nonprofit fundraising.


If the grand success of the 20th century was the rise of disability as an accepted political identity, we intend for the 21st century to be the time when disability is recognized as the constant but hidden variable in nearly all formulas for global human rights.
Including disability as a given factor in most people’s lives is essential to successfully advancing the human rights of people in minority communities; survivors of violence in the home, the school, and the street, and/or conflict zones, and as veterans; immigrant and refugees held in detention, incarcerated people, people coerced into institutionalization; people who live with chronic and catastrophic illness; neuro-diverse people; people who are young and old; male, female, and everywhere on the gender spectrum.
While disability has been understood as “different and divided” I believe it can come to be seen as “unique and united.”

As you sit sweating under an increasingly sweltering sun this day, feeling the inevitable effects of a wasteful attitude toward natural resources, you may not be thinking of another type of catastrophic loss caused by another type of massive denial. I speak of almost no one’s favorite topic: Disability.

How denying disability’s central role in just about every human life relegates significant chunks of our lives — and worse still, people-sized chunks — to the rubbish heap. It may be that “disabled” doesn’t feel like a word that fits who you are. Fine. Have you ever felt vulnerable? Think of “vulnerable” as a gateway word to a chronic case of disability-speak.

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The NotPeople Magazine Rationalest Man Alive Interview: Peter Singer Gets Notpersonal With A Respironics Bi-Pap S/T

Parody People magazine cover announcing NotPeople's Rationalest Man Alive! Peter SingerAs part of Tales From the Crip’s new series, Imaginary Interviews With People Who We Wish Were Imaginary, our own Respironics Bi-Pap S/T sat down with philosopher Dr. Peter Singer, Princeton’s Ira W. DeCamp Professor of Bioethics, whose anti-crip, pro-swine agenda argues that infanticide of babies with disabilities should be legal up until the 28th day after birth, that health care for people with disabilities should be rationed, and that the consciousness of some pigs doesn’t get enough respect. These fascis — fascinating ideas are just the tip of the iceberg of why Peter Singer is gracing the cover of NotPeople magazine as the Rationalest Man Alive! 

RBPS/T:  Welcome to the United States, Dr. Peter Singer, and all Bruces from Australia.

PS: G’day.

RBPS/T: We’re going to have a rational discussion!

PS: Rational.

RBPS/T:  Rational.

PS: Rational.

RBPS/T:  You’ve been named NotPeople’s Rationalest Man Alive 2015. How does this make you feel?

PS: Rational.

RBPS/T:  Any plans for keeping the title in 2016?

PS: I don’t make plans more than 28 days ahead.

Coming Up in the Interview! 

Peter Singer as you’ve never heard him!  

“Your bizarre stereotypes about Australian people are getting in the way of me explaining why infanticide is the rational choice for parents of disabled infants!”

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Better the Rights I Know: Part 1 of Why I Oppose Assisted Suicide Legislation

All of us know that our healthcare options are limited by the boundaries set by a for-profit healthcare industry. I’m justifiably skeptical of proposed assisted suicide legislation that was written and supported by the healthcare industry. Particularly when they are marketing it as a civil right that just happens to be the $300 alternative to more costly options.

Assisted suicide legislation, modeled on Oregon’s law, is once again up for a vote in the state where I live. I look at assisted suicide legislation as a public health issue that will affect thousands of people in the state of California alone. Consider just three factors in combination:

1) California’s fastest growing demographic is people age 60 and up.

2) Elder abuse is on the rise while investigating agencies such as Adult Protective Services (APS) caseworkers are already dealing with unmanageable caseloads.

3) A physician is not required to be present when assisted suicide drugs are taken but an heir may be present and help administer them. (“Self-administer” is a term that does, in fact, allow for assistance in taking the drugs.)

This is the real-world context where proposed assisted suicide legislation would be implemented. All of us know that our healthcare options are limited by the boundaries set by a for-profit healthcare  Continue reading